>> Sept. 28 Session Descriptions

General Sessions (AM)

Welcome

Keynote Presentations

Behavior Change and Story Power
Victor Stretcher, PhD, HealthMedia and University of Michigan School of Public Health
Dr. Strecher is a world-renowned visionary in the field of health behavior change and founder of HealthMedia, a J&J company. He will share new models for behavior change and detail his latest research on Digital Health Coaching and how the power of stories can help with disease management in the real world.

Becoming Christopher: How to Connect with the Power of Storytelling
Maureen Byrne, Novartis and Andy Phelan, Actor
Learn how Novartis used a fictitious character and the power of storytelling to create a film that engaged the 34,000 Americans who have cystic fibrosis and their loved ones.

Laugh, Sing and Eat Like a Pig
“e-Patient Dave” deBronkart and Brian O’Donnel, Klick
“e-Patient Dave”, a Stage IV cancer survivor and co-chair of the Society for Participatory Medicine, will share his own dramatic story and how he used the Internet in every way possible to participate in his own successful outcome. After his talk he will give away free autographed copies of his new book Laugh, Sing and Eat Like a Pig: How an empowered patient beat Stage IV cancer (and what healthcare can learn from it).

Keynote Speaker Q&A
Questions from the audience will be answered by the keynote speakers.

Trends & Data

Chronic Disease in the Internet Age
Susannah Fox, Pew Internet & American Life Project
People living with chronic disease are among the least likely to have internet access, yet once online they often dive deeply into gathering, sharing, and creating health information. What would happen if health care could tap their passion? What would happen if mobile access allowed everyone to participate?

What Search Activity Tells Us About Health
Bill Tancer, Hitwise and Author: Click: What Millions of People are Doing Online and Why it Matters

Speaker Q&A
Questions from the audience will be answered by the speakers.

Demos: Innovations in Thought and Technology

InTouch Solutions | Dare to Share: Social Sharing Risks and Solutions for Pharma by Wendy Blackburn
ListenLogic | Demo presentation by Scott Ballenger
evoke interaction | Demo presentation by Reid Connolly

Case Studies: Integrated Social Media Marketing

Sona Mehring, Caringbridge
Sona is founder and CEO of CaringBridge, a nonprofit providing free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. She will share how CaringBridge brings people together when health matters most and how patients and caregivers learn about the service.

Brooke McMillan, Livestrong
Brooke is the online community manager for LIVESTRONG in Austin, TX. She’ll discuss how the foundation uses twitter, Facebook, flickr, and their blog to build a strong online community. Brooke will also offer tangible examples of how to foster communication and maintain a safe supportive online environment.

Speaker Q&A
Questions from the audience will be answered by the speakers.

Specialty Conference Sessions (PM)

Mobile Health

Mobile Trends
Jane Sarasohn-Kahn, Think HEALTH and and Health Populi Blog
The proliferation of mobile platforms, from bandages and phones to smart textiles and wireless pillboxes, are laying the foundation for mobile health. However, platform and app availability doesn’t mean people will engage with them. What’s the forecast for mobile health adoption by patients? To answer this question, Jane will identify the key enablers and barriers for the future of patients and mHealth. Attendees of the session will be grounded in the realities of mobile health — most importantly, that it’s a team sport. Jane works with health care stakeholders in the U.S. and Europe at the intersection of health and technology. She also works closely with the California HealthCare Foundation on health/technology issues, and has written How Smartphones Are Changing Health Care for Patients and Providers, and The Wisdom of Patients, Participatory Healthcare: Online and Mobile Tools Help Chronically Ill Manage Their Care, among others.

Can your cell phone be your psychologist?
Margaret Morris, PhD, Intel Digital Health
Dr. Morris, a clinical psychologist and senior researcher at Intel, will present her work in Mobile Therapy. She will explain how Cognitive Behavioral Therapy was translated into mobile interactions and share case studies to illustrate how people used mood mapping and mobile therapies to improve emotional self-awareness and coping in everyday life.

Be Active, Get Rewards!
Seth Tropper, Switch2Health
Learn how a rewards based web platform will influence positive behavior.

Get Moving!
Jen McCabe, Contagion

Influencing the Decisive Moment: A Case Study in Smart Medication Packaging
David Rose, VItality GlowCaps
Vitality’s wireless GlowCap packaging is changing the game in medication adherence. Now, behavioral health programs can act and react in realtime to influence patient behavior through text messaging, IVR calls, and social network connections. In a recent Harvard Medical School study GlowCaps were shown to increase adherence to over 95% — come and learn how.

Improving Multiple Sclerosis Self-Care via Smart Phone Apps
Amanda Bednar, MSAA
MSAA is a leading MS advocacy group with 40 years history in patient engagement, education and support missions. Smart phone applications are a new frontier that allow us to engage patients and their care givers in new, previously unavailable ways. We will discuss how our new mobile engagement program improves the lives of MS patients and advances the search for cure.

Texting 4 Obesity in Primary Care
Sloan Rachmuth, HEALTHeME
Learn how HEALTHeME, a start-up company based in North Carolina, is successfully deploying a web and text messaging intervention for obesity in busy primary care practices, and hear how providers are embracing this new approach for their patient populations.

Social Pharmer

Case Study: Maximizing Impact of an Unbranded Campaign with Evidence-Based Marketing
Tina Sampath, Gilead and Kirsten York, Return on Focus
In this insightful talk, learn how these two companies partnered to attain and use the highest level of evidence available to support the creation and execution of a transformative unbranded campaign for patients living with chronic angina.

What Social Media Can Teach Us about the Patient Journey
Jeff Greene, HealthEd
Healthcare consumers are flocking to the Web to post about their experiences with a given disease and the treatments they hope will help fight it. State-of-the-art search software is available to capture and process these conversations, meaning pharma has access to a wealth of consumer dialogues. Yet ‘listening’ to patients doesn’t mean we’re hearing them. This session will reveal findings from a mining effort of thousands of online conversations about a specific disease-state, along with the implications for brands across every disease category.

Panel: Collaborating for Trust: Pharma, Patient Organizations and Social Media
Tai Spargo, National Organization for Rare Disorders | Clarissa Trujillio, Lundbeck | Eileen O’Brien, Siren Interactive
Cause marketing can provide a safe introduction to social media for pharmaceutical companies, help to educate regulatory/legal teams on the benefits and add value to the patient relationship. Non-profit organizations can be an important partner in these efforts and provide an effective way for pharma to gain access to patients via social media. Lundbeck Inc. and the National Organization for Rare Disorders will present a case study to show these ideas in practice.

Using New Media to Engage At Risk Heart Patients
Barbara Gaynor, Boston Scientific
From heart symptoms to diagnosis to treatment, patients and their families are online seeking legitimate, appropriate and helpful information when faced with heart disease. See how Boston Scientific merged multiple overlapping web resources into one to provide comprehensive information and support to heart patients.

Healthseeker: Engaging and Motivating with a Facebook Game
Manny Hernandez, Diabetes Hands Foundation | Michael Fergusson, Ayogo
There is a widely-held belief that playing games online is a waste of time at best (“Your friend sent you a sheep!”), and part of an unhealthy sedentary lifestyle at worst. A closer look reveals something quite different, however: games and play are one of the strongest motivators of behaviour, and a key tool for anyone looking to develop or reinforce healthy habits. HealthSeeker is a game that turns your Facebook network of friends onto a source of support as you complete real-world missions to get healthier through simple everyday actions. Join us for a discussion about the game, how it works and how it came about.

Games for Health

The Games for Health Landscape
Ben Sawyer, Digital Mill
The Games for Health space has been quite active in recent years since emerging at the earlier part of the decade. As the decade comes to a close what trends are emerging from early efforts that have staying power and what new trends are evolving into promising new areas of activity? In this talk, the co-founder of the Games for Health Project will provide specific insight into where things are and where they are going with a special emphasis on ideas that offer scalable opportunities and potential ROI.

Exergaming
Elizabeth Lyons, University of North Carolina
Video games that promote physical activity, or “exergames,” are becoming increasingly popular. This talk will provide an overview of current and ongoing research into these games and their health effects, with a particular emphasis on game and individual player characteristics that may produce different outcomes.

Games for Rehab: Customizing Versus Adapting Them
Judith Deutsch PT PhD, Rivers Lab UMDNJ
A snapshot of clinician researcher Judith Deutsch’s experience with her customized systems and games to improve mobility and walking for people post-stroke contrasted with adapting Wii games for a similar purpose.

fMRI Studies & Using Games for Parkinson’s
J. Adam Noah, PhD, ADAM Center at Long Island University, Brooklyn, NY
Dr. Noah will discuss potential benefits of off-the-shelf rhythmic exergames as targeted virtual rehabilitation and training programs. He will present behavioral data and functional brain scans suggesting the potential of Dance Dance Revolution and other rhythmic exergames to target multiple neural networks and promote plasticity.

Psychiatric Considerations and Recommendations for Game Designers
Paul Ballas, Green Tree School